Privacy Policy

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Privacy Statement

The purpose of this privacy policy is to set out the type of information Liver Foundation Limited ABN 65 821 709 952 (Liver Foundation/we/us) will collect and how we will hold, use and disclose your personal information, which you provide to us.

We respect the confidentiality and security of the personal information that you may provide to us. The way we manage your personal information is governed by the Privacy Act 1988 (Cth) (Privacy Act) and the Australian Privacy Principles (APPs) established under the Privacy Act. Please note that this Privacy Policy does not extend your rights or Liver Foundation’s obligations beyond those defined in the Privacy Act. If there is any inconsistency between this Privacy Policy and the Privacy Act, this Privacy Policy shall be interpreted to give effect to and comply with the Privacy Act.

By visiting the Liver Foundation website or engaging with our services, you are accepting and consenting to the practices described in this privacy policy. The information we collect from you allows us to personalise and improve our services.

Whenever it is lawful and practicable, we may allow you the option of not identifying yourself when dealing with us. For example, general access to our website does not, and general telephone queries do not, require you to disclose personal information about yourself. However, there are parts of our website where we may need to collect personal information from you for a specific purpose – for example, to register you for any events that we organise or to receive information from us.

Your Personal Information

For the purposes of this Privacy Policy the following terms have the following meanings:

‘Personal information’ has the meaning given to it in the Privacy Act, being information or an opinion about an identified individual, or an individual who is reasonably identifiable, whether the information is true or not, and whether the information or opinion is recorded in a material form or not. Examples of personal information include an individual’s name, address, telephone number and date of birth.
‘Sensitive Information’ is:
- personal information or an opinion about:
  - racial or ethnic origins;
  - political opinions or political associations;
  - philosophical beliefs or religious beliefs or affiliations;
  - sexual preferences or practices;
  - criminal record;
- health information about an individual;
- genetic information about an individual that is not otherwise health information.
‘Health Information’ is:
- personal information or an opinion about:
  - an individual’s physical or mental health or disability (at any time);
  - an individual’s express wishes about the future provision of health services for themselves; or
  - a health service provided, or to be provided, to an individual;
- other personal information collected to provide, or in providing, a health service;
- genetic information about an individual in a form that is, or could be, predictive of the health of the individual or a genetic relative of the individual.

This Privacy Policy includes examples but is not intended to be restricted in its application to such examples. Where the word ‘including’ is used, it shall mean ‘including without limitation’.

Consent

Providing your personal information to Liver Foundation is optional. However, if you do not provide your personal information to Liver Foundation, we may not be able to provide you with the full suite of services that are provided through the website. We also may not be able to contact you or give you access to information. By providing your personal information you are deemed to have consented to the collection, use, disclosure and storage of that information as outlined in this Privacy Policy.

Collection and Use of Personal Information

Your personal information will be collected by Liver Foundation from a variety of sources including:

our website;
your engagement with our services;
our organisation’s activities, events or marketing;
or interactions with you by mail, telephone, email or internet; and
sources where you have consented to us collecting your information.

We will only collect personal information that you choose to provide and where it is reasonably required. You may choose to provide us with personal information if, for example, you contact us with an enquiry, register on the website, fill out a survey or other form with your personal information included or request us to provide you with information.

Information collected

We may collect the following types of personal and sensitive information:

full name, date of birth, gender, and contact details;
medical and health information relevant to liver health (e.g. diagnosis, treatment history, test results);
information about your race or Aboriginal and Torres Strait Islander identity;
whether you belong to a priority population group (e.g. LGBTQIA+, remote or regional, languages spoken other than English)
information about your interactions with us (e.g. donations, participation in programs or research);
emergency contact details; and
feedback, complaints, and survey responses.

Personal information collected via the website

Every time you visit the website, Liver Foundation may collect information about you, including:

the date and time of your visit to the Liver Foundation website;
your IP address;
the type of browser and operating system you are using; and
any address of a recurring site and any website you are about to visit.

The above information provides Liver Foundation with details about how the website is used including the frequency and duration of visits, and which web pages you have accessed on the website. The information we collect will not personally identify you.

Most commercial websites, including this website, use cookies. Cookies are pieces of information that websites send to the browser and are stored in the computer hard drive. Cookies make using the website easier by storing information about your preferences on the website. Cookies will not identify you personally. If you would prefer not to receive cookies, you can alter your security settings on your web browser to disable cookies or to warn you when cookies are being used. However, by disabling the ‘cookie’ function in your web browser you may impede your ability to use parts of the website.

Collection an Use of Sensitive Information

We may also collect sensitive information from you (for example information about your health or identity) to allow Liver Foundation to properly assess and advise on your health care needs.

Sensitive information will only be collected with your consent and when it is reasonably necessary to carry out Liver Foundation’s activities. Liver Foundation assumes you have consented to us collecting any information that you provide to us in accordance with this Privacy Policy, including sensitive information, unless you tell us otherwise at the time you provide it.

Use of Personal Information

Use generally

You consent for us to collect, use, disclose and store your personal information for the following purposes:

to conduct our activities including health-related services and support;
to promote our activities;
to communicate with you via different mediums;
to conduct research and public health initiatives;
to comply with our legal and regulatory obligations;
to solicit and process donations;
to help us manage and improve our services;
to assess, train, work with and manage our staff, volunteers and contractors; and
to protect the safety and security of our staff, premises and assets.

Promotions, marketing, E-newsletters

We may use information for internal marketing analysis, for example, to assess trends amongst the people and organisations we engage with or to measure the amount of traffic to our website. We may also use your personally identifiable information in order to communicate with you. Generally, we do not rely on consent as a legal basis for processing your personal data although we will get your consent before sending third-party direct marketing communications to you via email or text message. You have the right to withdraw consent to receive marketing information at any time by contacting us or using the ‘unsubscribe’ feature included in our electronic communications.

Third-Party Businesses and Websites

This website may contain links to other websites outside of our control and which do not operate under this statement. When you click through to these websites, this statement no longer applies. We recommend that you read the privacy policies for all third-party websites.

Disclosure

You consent that Liver Foundation may disclose your personal information:

to third parties who assist us in providing services or who perform functions on our behalf (such as mail service providers, professional advisers and specialist consultants);
to third parties such as medical professionals or researchers with appropriate confidentiality obligations in place;
organisations that assist us in research and development;
where it is required, authorised or permitted by law (for example disclosure to various government departments or disclosure to courts under subpoena);
in the public interest (for example where a crime, fraud or misdemeanour is committed or suspected and disclosure is justified); and
to anyone else who you authorise us to disclose it to from time to time.

We use our best endeavours to ensure that we only disclose personal information to third-party service providers that have implemented appropriate systems and processes to protect your personal information.

We will only disclose personal information, other than as mentioned above, where we are legally required or compelled by a law enforcement or government agency to do so.

Overseas disclosure

To provide customer support, perform back-office functions, store personal information, or to otherwise assist us in providing our services to you, we may engage third-party service providers that are located in a country other than that in which you are based. For example, our CRM management system stores data on servers located overseas. However, access is restricted so that data cannot be accessed by individuals internationally. Sensitive information is stored on a separate database with restricted access within Liver Foundation’s organisation and is only stored on servers located in Australia.

This does not lessen our obligation to protect your personal information, and we have implemented security measures to protect the security of your personal information. However, as with any transfer of data, there are still risks of data breaches. By requesting our services, you are explicitly consenting to the international transfer and processing of your personal information in accordance with this Privacy Policy, in full and informed knowledge of the risks associated with such transfers and processing.

Disclosure for analytics

We utilise the services of Google Analytics to track and improve usage of our website. Google Analytics is a web analysis service provided by Google, which utilises data collected to track and examine the use of our website, prepare reports on activities and share them with other Google services.

Google may use the data collected to contextualise and personalise the ads of its own advertising network. Personal data collected by Google includes cookie and usage data, which is processed in the United States of America. You can review Google’s privacy policy here: www.google.com.au/policies/privacy

Protecting Your Personal Information

We take reasonable steps to:

protect your information from misuse, interference, loss, and unauthorised access or disclosure;
ensure staff are trained on privacy obligations;
implementing multi-factor identification and restricted access to databases utilised within the organisation; and
destroy or de-identify information when it is no longer required.

Your personal information may be stored in hard copy documents in locked filing cabinets, or in electronic format on a cloud-based databaseAccess will be restricted to those within Liver Foundation who require it to carry out their role within Liver Foundation.

Liver Foundation treats breaches of your privacy very seriously and any breach will result in disciplinary action being taken. If a data breach occurs that involves unauthorised access to, disclosure of, or loss of personal information and this is likely to result in serious harm to any individual about whom the information relates, we will comply with the data breach notification scheme in the Privacy Act. Liver Foundation ensures that our management of personal information is in accordance with this Privacy Policy and where applicable, the Privacy Act 1988 or the EU’s General Data Protection Regulation (the GDPR).

Accessing and Updating Your Personal Information

You have a right to request access to the personal information that we hold about you. The right to access is subject to certain exceptions allowed by law. Liver Foundation will, subject to applicable privacy laws, provide you with access to your information that is stored with us, and will deal with your request in a reasonable time frame, in most circumstances within 30 days.

Please be aware, in some circumstances the law permits Liver Foundation to refuse your request to provide you with access to your personal information. In addition to privacy laws, you may have rights to access your personal information contained in certain Liver Foundation documents. You can apply for access through the Freedom of Information Act 1982 or relevant state and territory legislation

If you believe that any information, we hold about you is incorrect, out of date, irrelevant or misleading we will take reasonable steps to correct this information once it is brought to our attention. If you wish to access your information, please contact the Privacy Officer on the details listed below.

Retention of Data

We retain personal and sensitive health information for as long as it is necessary to fulfil the purposes for which it was collected, including to comply with applicable legal, regulatory, and reporting obligations.

In particular:

health records and related information are retained in accordance with relevant state and territory legislation;
if you are a participant in our health programs or have engaged with our services, we may retain your records for a minimum period of 7 years from the date of last contact, or longer where required by law; and
if you are a minor at the time of service, we may retain your information until you turn 25 years of age or as otherwise required by law.

Once personal information is no longer required for any lawful purpose, we will take reasonable steps to securely destroy or permanently de-identify the information.

Data Retention

We will only retain your personal data for as long as reasonably necessary to fulfil the purposes we collected it for, including for the purposes of satisfying any legal, regulatory, tax, accounting or reporting requirements. We may retain your personal data for a longer period in the event of a complaint or if we reasonably believe there is a prospect of litigation in respect to our relationship with you.

To determine the appropriate retention period for personal data, we consider the amount, nature and sensitivity of the personal data, the potential risk of harm from unauthorised use or disclosure of your personal data, the purposes for which we process your personal data and whether we can achieve those purposes through other means, and the applicable legal, regulatory, tax, accounting or other requirements.

International Users

If you are located outside Australia and choose to provide your personal information to us, your personal information will be processed in Australia and in accordance with this Privacy Policy.

Changes to this Privacy Policy

Liver Foundation may change this Privacy Policy at any time. If we change this Privacy Policy, those changes will be set out in that revised policy and displayed on our website, so that you have immediate access to the changes. If you have any questions in relation to Liver Foundation’s commitment to privacy, please contact our Privacy Officer.

Lodging a Complaint

If you have a complaint about how we handled your personal information or about any decision to refuse access or correction of your personal information, please contact us using the Contact Details below. We will request that you lodge your complaint in writing.

We will acknowledge receipt of your complaint as soon as possible after receiving your written complaint. We will then investigate the circumstances of your complaint and provide you with a response within a reasonable timeframe, in most circumstances within 30 days.

If you are still not satisfied with how your complaint is handled by us, then you may lodge a formal complaint with the Office of the Australian Information Commissioner at:

Telephone: 1800 841 118 (if calling from outside Australia including Norfolk Island please call: +61 3 7045 5077)

National Relay Service:

TTY users phone 133 677 then ask for 1800 841 118
Speak and Listen users phone 1300 555 727 then ask for 1800 841 118
Internet relay users connect to the National Relay Service then ask for 1800 841 118

Post: Office of the Australian Information Commissioner, GPO Box 5218, SYDNEY NSW 2001

Fax: +61 2 9284 9666

Email: enquiries@oaic.gov.au

Website: http://www.oaic.gov.au/privacy/making-a-privacy-complaint

HOW TO CONTACT US

If you wish to contact us about your personal information, to obtain further information or lodge a complaint, you should contact our Privacy Officer at the following email address: hello@liver.org.au.

This Privacy Policy was last updated on 18 October 2025.